The Butterfly Link

February 9, 2011 - Leave a Response

Ok. You’re probably wondering where I got the title for my blog.  Well, one of the first lupus symptoms that I exhibited was the “butterfly rash” across my cheeks and nose.  Although I didn’t know it at the time, it is abundantly evident when I look back at pictures of myself from junior high and high school.  My cheeks are so “rosy”.  Also, from as far back as I can remember, I have been afraid of butterflies.  Go ahead and chuckle.  I have no idea why a little creature that most people think is beautiful causes me to shrink in terror, but it does.  So, having something on my face called the “butterfly rash” was particularly horrifying to me.  But, it made me want to fight the disease harder.  I was not going to let this butterfly disease get the best of me.  That is why I am battling the butterfly every day of my life!!

Hello World!

February 8, 2011 - Leave a Response

Hi!  I am a 30 plus year Lupus survivor.  I was diagnosed with Systemic Lupus Erythematosus about 15 years ago, but have had symptoms since I was a teenager.  I have been through a lot with the disease and have discovered many creative ways to deal with the illness and the medications that I have had to take over the years.  My goal with this blog is to show lupus sufferers and their families that a lupus diagnosis is not the end of the world.  You can have a good life.  It might not be the life you’ve always dreamed of, but it can be a good life nonetheless.  If you have any questions for me, please email me at